JRA – Page 2 – Alexandra Mars

June 23, 2023

One thing that gets on my nerves about being disabled. People try to fix my problems when I have explained why I can’t. Click on the link to read my blog.

One thing that gets on my nerves about being disabled. People try to fix my problems when I have explained why I can’t.

What do I mean “fixing my problems”?

When I have clearly stated why I can’t do something because of financial or health issues, then I receive unwanted advice on how to address the problem.

I understand that my life and my struggles are so different from able body people. Dealing with health and financial issues and fighting against a disease (rheumatoid arthritis) that wants to cripple me.

One reason why some people do this is because it is a coping mechanism. My life and their lives are radically different. Perhaps, they are comparing their lives to mine. There could be a lot of reasons why people are trying to fix my problems.

That I am a reminder that health is fragile, and that terrifies a lot of people.

I just want people to ask me if I need help, to respect my boundaries, and to ask questions. Also, realize that I am human with desires and needs, have a different perspective, and my life as meaning and value.

Prompt for June 18, 2023

I have a sock aid I had for very a long time that I used regularly to put on my socks. If you want to learn more click on the link.

What’s the oldest thing you own that you still use daily?

I have a sock aid I had for very a long time that I used regularly to put on my socks.

My sock aid helps me put on my socks because sometimes I have difficulty putting on my socks due to rheumatoid arthritis.

28 May 2023

Where I have been?

I been dealing with flare-ups, it is time for me to change my medications.

My chores are increasing since the warmer weather has arrived. I’m still recovering from surgery, and my body reminds me I’m still healing.

I’m also working on several writing projects that have been taking up my time, and I have been working on my music again. It is nice to sit in my chair for a longer period of time.

May 28, 2023

What does “having it all” mean to you? Is it attainable?

Having it all means to me having enough energy and mobility to do what I need and want.

Is it attainable? Some days, yes, and other days no way.

Not Flawed (May 8, 2023)

The one piece of advice that I would give my 20-year-old self is to learn to love your space despite your circumstances. As I mentioned in my recent podcast on May 7 of 2023 that I didn’t love my space.

It didn’t help ADHD/ADD was affecting my organizational skills. People made judgments saying I was lazy, and I didn’t care. Dealing with RA (rheumatoid arthritis) flared up that almost crippled me. So, I had a lot of resentment towards my space because I thought there was a major flaw with me.

The never-ending cycle of purging items, which I thought was cleaning. Then in a few weeks, the cluttered would return, adding to my resentment.

I didn’t understand was how the RA was impacting my life during a flare-up. Just doing the necessary chores, that was it. What I needed in those times was help and compassion.

Instead, I blamed myself for circumstances that were out of my control. Resentment continued to build towards my space as hopelessness settled in.

I wasn’t flawed.

I had the wrong ideas about clutter and organization.

Then one day, I realized that people who had organized homes and kept them maintained; actually, loved the space that they lived in and wanted the best for them and their families.

By loving my space that I admitted I deserved a clean, welcoming environment, and a peaceful sanctuary from the rest of the world. And that I needed to create a system that functioned for my lifestyle.

April 12, 2023

What’s the most fun way to exercise?

Since I have RA (rheumatoid arthritis) exercise is a good way for me to maintain my mobility. Walking is the best way for me to get in my steps but, it can be boring at times. That’s when I get out the Nintendo WII board makes exercising fun for me and is a great way to get in my steps.

The WII board provides me where I can exercise at home, especially in the winter months can be cold and snowy. Also, there is a nice variety of games to choose from that I can play too.

Having an exercise routine that is a low impact on my joints helps me to keep my independence and keeps my joints moving. Not only, do I battle fatigue, but being sedentary. Exercising keeps me moving and healthy too.

https://anchor.fm/alexandra-mars1/episodes/Sunday-Talk-with-Alexandra-Mars-June-26–2022-e1keptm

Monday Talk with Alexandra Mars (June 13, 2022)

In this week’s episode, I will be talking about why I cut my hair, and self-confidence, and discussing Superman and Lois’ plot twist about Lana learning Superman’s identity.

https://anchor.fm/alexandra-mars1/episodes/Monday-Talk-with-Alexandra-Mars-June-13–2022-e1jti2a

Category: JRA