Oct 13, 2021

Yesterday, I received my infusion, and the flare-up is over! I am feeling much better. Now, I need to get back into my schedule and start to exercise again. So, I will be working on that this week.

I am blessed to have found a biologic that works for me. There are others with RA that it takes trying different medications to find what works for them.

Rheumatoid Arthritis is an nasty disease and it affects everyone differently.

Day 4 of the Flare-up of Rheumatoid Arthritis

Here’s a link if you would like to listen:

https://anchor.fm/alexandra-mars1/episodes/Day-4-of-the-Flare-up-of-Rheumatoid-Arthritis-e18jgt5/a-a6m6rkn

Yep, it is day four of the flare-up. And I am not feeling the greatest right now as I’m writing this post. Yesterday, I was up real late the night before, and it messed up my sleeping schedule. So, I just took it easy yesterday and didn’t do anything. Today, I just feel really lousy which is normal, dealing with a flare-up.

So yeah I am writing this post trying to decide what I want for breakfast. Do I wanna scramble some eggs or do I just wanna eat some cereal. So yeah. So I took a medication I have to wait about at least 30 minutes before I can eat. So I started thinking that you are wondering how do I prepare meals during a flareup. Which is a good question.

Well, I’ve always been a huge fan of leftovers. And I always like making extra food when I prepare a meal for the times when my energy levels are low or like times like this when I’m dealing with the RA. Which helps when it comes to having food prepared ahead of time. Last night I had leftovers; I had a hamburger, some macaroni salad, and macaroni and cheese that was my dinner. It was delicious.

Tonight‘s dinner is going to be something simple and easy to fix. I’m not spending a lot of time over the stove cooking a huge meal. I want to have some smoke sausage and probably a couple of cans of vegetables. That later this week, I’ll have different kinds of leftovers in my fridge. I like to have variety in my leftovers. And this helps me by taking off the pressure for what’s for dinner? Also, having a variety of leftovers helps with not getting bored eating the same thing over and over again. Still at the same time trying to have a healthy balanced diet as well, which can be hard at times when you’re dealing with a chronic illness like rheumatoid arthritis.

Having leftovers helps to reduce relying on eating fast food. And that’s what I am trying to cut down on. So I use leftovers to make sure I have meals when I need them and when I feel like it I also cook. So this is how I handle what’s for dinner when I have a flare-up.

October Flare-up Day Two

Here’s a link if you would prefer to listen:

https://anchor.fm/alexandra-mars1/episodes/Day-4-of-the-Flare-up-of-Rheumatoid-Arthritis-e18jgt5/a-a6m6rkn

Well, it is day two of my flare-up dealing with the RA (Rheumatoid Arthritis). I am feeling a little bit better than yesterday, and I was able to get my laundry done last night; so that was a huge win in my favor. I talk to my rheumatologist’s office staff and I’m able to get my infusion next week. Hip hip hooray! Now, it’s just surviving until next week to get my meds.

So I’m glad I’m getting my infusion next week. My left ankle joint feels like it is on fire it and it is hurting all the time, and there’s nothing that doesn’t stop the pain unless I’m sleeping. Today, my hips starting are aching. I have been taking extra meds over-the-counter to help with the pain, especially at night. To be honest, this is just my life when I have a flare-up. I’m just doing the basic things to get through my day until I get my infusion.

I am focusing on what I can do instead of what I can’t. And my attitude helps a lot when dealing with a bad flare that’s trying to get worse. If I sit here and focused on what I cannot do I would be so depressed. That I would find myself in a dark place that I don’t want to be. And I find it helps me to focus on what I can do especially when I’m in a lot of pain. So what am I doing? I am working on my blog right now, I plan to read a book later today, and if I feel up to it I am planning to work on a new story outline it’s going through my head. I am focusing on tasks it does not take a lot of energy and where I can sit and do not affect my joints that much. And tonight I’ll probably watch TV again. Perhaps a movie 🎥. So basically the tasks that I’m doing are not putting a lot of stress on my joints or causing me pain.

I’m prioritizing tasks that must get done. I took out the garbage this morning. I am doing tasks that need to get done that can’t wait because I’m in survival mode.

I don’t care that the dishes are not done or my house is messy and cluttered. Or am I’m still in my pajamas. Right now, it’s about me taking care of myself independently to the best of my ability despite having pain. That means that I have to let other things go until I am feeling better.

Oct 7, 2021

Here’s a link if you prefer to listen:

https://anchor.fm/alexandra-mars1/episodes/Oct-7–2021-e18jgt2/a-a6m6r1j

Today, I am dealing with a flare-up from the RA. And it’s taking a lot out of me. My hands, my elbows, my knees, and my ankles are all hurting constantly. I took my regular medication this morning I’m feeling a little bit better but not that much. I’m surprised I have some energy but I’m thinking it is from the prednisone that I took yesterday before I went to hand therapy.

If I didn’t take the prednisone yesterday I don’t think I’d be out of bed today. I would just be doing the bare necessities and not trying to get my laundry done. My rheumatologist doesn’t like me to take them all the time only when it’s absolutely necessary. Because of the side effects from it. And I agree with her on that.

Right now it just hurts to move even with the slightest movement my joints are aching and throbbing. Over the years, I’ve trained myself to move despite the pain but there comes a time after a while I need something to take away the pain. The reason why am in so much pain it’s because I didn’t get my biological medicine because I’ve been so sick. So I’m trying to move up my appointment for this month to get my medicine.

#RAStrong #RAWarrior

July 27, 2021

Here’s the link if you would like to listen:

https://anchor.fm/alexandra-mars1/episodes/July-27–2021-e152ldg

Today, I would like to discuss why I’m losing weight. A couple of weeks ago, I saw my reflection in the mirror. I didn’t like what I saw. The blame is on me for letting myself go.

Having rheumatoid arthritis makes it harder to lose weight for different reasons. For me, it is money and mobility issues. I don’t have the extra funds to join a gym. Because of the joint damage, my mobility is limited, and I need to be careful how much I can push my body. Now, living in a world dealing with Covid, so, I’m avoiding crowds.

So, I plugged in my WII video game system and started playing some sports games, but soon realized that I needed more exercise games for my lower body. I found and brought a WII Fit Plus at a good deal. And I love it! 

When I mentioned to other people; I’m trying to lose a few pounds, and their reply is I don’t need to lose weight. The clothes that I wear hide my extra pounds and maybe people think I don’t need to lose any weight. That is not the case at all.

I have been thinking about that statement lately. I wanted to ask others: don’t I deserve a healthy body to the best of my ability? Do you realize I am on a quest to save my joints? Just because I have RA, and why can’t I look attractive?

Yes, I deserve to have a healthy body that my circumstances allow. By losing weight and watching my calorie intake, I will lower my high blood pressure, reducing my chances of developing diabetes, reducing my asthma symptoms, and improving my quality of life.

By exercising, I am saving my joints by reducing my weight. The extra weight causes more stress on my joints, preventing the normal wear and tear, and more inflammation produce throughout my body. By losing, weight will reduce the stiffness and soreness in the mornings during the winter months.

Look, I know what my body looks like, and I know how I move because of the limited mobility. Just because I have RA doesn’t mean that I am broken. I want to present my best self to the world. Attractiveness means to me by looking my best and feeling great about myself.

When someone tells me I don’t need to lose weight, that person is telling me my life has no value because I don’t meet society’s expectations. 

I should accept it and move on.

I am an intelligent, problem-solver, and creative person that brings value to this world!

It is time for society to stop devaluing people with disabilities and start seeing us for who we are as strong and intelligent individuals!

Back Pain

Here’s the link if you would to listen:

https://anchor.fm/alexandra-mars1/episodes/Back-Pain-e13c8hi

Today, I woke with my lower back still aching and stiff, but I’m a lot better from last night. I’m counting down the days until I get my biologic medicine.

Keep moving—is burned into my mind. If I allow myself to stop moving, then my other joints will become stiff and swollen. I will lose my mobility.

If I lose my mobility, then I will lose my freedom, my independence, and I don’t want that.

There are other things that I want to do like finishing my manuscript, grow my podcast audience, play with my cat, and spend time with my family.

To live my best life.