To be honest, I don’t know how to answer this question. To read click on the link.
How would you describe yourself to someone who can’t see you?
To be honest, I don’t know how to answer this question. If someone can’t see me because that person is blind, how do I describe a disability? I can’t. I have no words.
I do have deformities in my joints from battling Rheumatoid Arthritis since I was a child. If that person wanted to feel my fingers to understand my joint damage. Perfectly fine with me.
What would you change about modern society?
I would make accommodations available to the disabled community so that we can live an independent life.
Rheumatoid arthritis because I have it, and I know how it affects my life. To continue reading click on the link below.
On what subject(s) are you an authority?
Rheumatoid arthritis because I have it, and I know how it affects my life.
Dyslexic because I deal with dyslexia, dysgraphia, and dyscalculia.
The Bible. I am reading it, and I want to understand God better.
Writing. For years I have researched and read books on how to write a novel.
If I have questions or want to understand a subject better, I read and research things.
Learning never ends.
What’s your definition of romantic?
My definition of romantic has changed over the years. Now, it’s just having someone get to know me as an individual despite having a disability. That’s my definition.
One thing that gets on my nerves about being disabled. People try to fix my problems when I have explained why I can’t. Click on the link to read my blog.
One thing that gets on my nerves about being disabled. People try to fix my problems when I have explained why I can’t.
What do I mean “fixing my problems”?
When I have clearly stated why I can’t do something because of financial or health issues, then I receive unwanted advice on how to address the problem.
I understand that my life and my struggles are so different from able body people. Dealing with health and financial issues and fighting against a disease (rheumatoid arthritis) that wants to cripple me.
One reason why some people do this is because it is a coping mechanism. My life and their lives are radically different. Perhaps, they are comparing their lives to mine. There could be a lot of reasons why people are trying to fix my problems.
That I am a reminder that health is fragile, and that terrifies a lot of people.
I just want people to ask me if I need help, to respect my boundaries, and to ask questions. Also, realize that I am human with desires and needs, have a different perspective, and my life as meaning and value.
The one piece of advice that I would give my 20-year-old self is to learn to love your space despite your circumstances. As I mentioned in my recent podcast on May 7 of 2023 that I didn’t love my space.
It didn’t help ADHD/ADD was affecting my organizational skills. People made judgments saying I was lazy, and I didn’t care. Dealing with RA (rheumatoid arthritis) flared up that almost crippled me. So, I had a lot of resentment towards my space because I thought there was a major flaw with me.
The never-ending cycle of purging items, which I thought was cleaning. Then in a few weeks, the cluttered would return, adding to my resentment.
I didn’t understand was how the RA was impacting my life during a flare-up. Just doing the necessary chores, that was it. What I needed in those times was help and compassion.
Instead, I blamed myself for circumstances that were out of my control. Resentment continued to build towards my space as hopelessness settled in.
I wasn’t flawed.
I had the wrong ideas about clutter and organization.
Then one day, I realized that people who had organized homes and kept them maintained; actually, loved the space that they lived in and wanted the best for them and their families.
By loving my space that I admitted I deserved a clean, welcoming environment, and a peaceful sanctuary from the rest of the world. And that I needed to create a system that functioned for my lifestyle.
Today, I am tackling paper clutter! It is exhausting. For the last few weeks, I have been drowning in paper clutter. Needing a break, I decided to write this post because my mind needs to relax. I’m proud of myself for the that I am making.
Something, I have noticed is that paper clutter quickly piles up in my home. My ADD kicks in and I procrastinate, I just don’t want to deal with it. Then the paper clutter continues to build. It never ends.
Today, I had enough. I need my space, and I need the clutter to be gone. That’s my motivation.
I need to get back to it!
What’s the most fun way to exercise?
Since I have RA (rheumatoid arthritis) exercise is a good way for me to maintain my mobility. Walking is the best way for me to get in my steps but, it can be boring at times. That’s when I get out the Nintendo WII board makes exercising fun for me and is a great way to get in my steps.
The WII board provides me where I can exercise at home, especially in the winter months can be cold and snowy. Also, there is a nice variety of games to choose from that I can play too.
Having an exercise routine that is a low impact on my joints helps me to keep my independence and keeps my joints moving. Not only, do I battle fatigue, but being sedentary. Exercising keeps me moving and healthy too.
My apologies that I went dark this week. I am in the process of getting ready for my surgery. I may be offline this week. For the latest, you can to Twitter @ AMstorytelling.
Thank you.
There won’t be a Sunday Talk with Alexandra Mars podcast this week. I’m not feeling well, and it is difficult for me to concentrate. I’m in the process of working on another podcast short for this week. I hope to have it available in a couple of days.
Alexandra Mars 