What have you been putting off doing? Why?
1. I’m putting off yesterday’s dishes because I’m hurting.
2. The second major task I’ve procrastinated on is cleaning under my bed.
What have you been procrastinating on? Let me know in the comments.
Category: chronic illness living
October 6, 2023
Tell us about a time when you felt out of place.
When I meet new people, their curiosity about my physical disability is evident in their expressions. I push through any initial hesitation and focus on enjoying our time together.
Another incident that makes me feel out of place is when I receive unsolicited advice on how to cure Rheumatoid Arthritis. That makes me uncomfortable. Most of the time, it comes from a caring place, with people wanting to help me get better. What they don’t realize is that they are crossing a personal boundary in my life regarding how I manage my health, which is none of their business. They are treating me like a child because I refuse to accept their advice on how to handle my disability and don’t respect my decisions.
Most of the time, I ignore it because I don’t want to be friends with them. There are times in a friendship when a friend has crossed that boundary, and I need to tell them to basically back off. If the friendship ends, it wasn’t strong enough to begin with.
Have you ever found yourself on the receiving end of unsolicited advice, especially when it comes to personal matters? If so, how did you handle these situations, and what lessons did you learn from them?
October 5, 2033
Your life without a computer: what does it look like?
Life without a computer or other technology would be a living nightmare that never ends.
I rely on technology due to being dyslexic and having Rheumatoid Arthritis, as it provides the access and accommodations I need. Also, October is Dyslexia Awareness Month.
I rely on dictation software to type for me, especially due to joint deformity in my fingers and dysgraphia. Speaking sentences is easier than typing them, and it allows me to create longer and clearer sentences. Additionally, my handwriting is nearly illegible, making technology an essential tool for communication.
When it comes to editing, I need technology. I love the feature of text-to-speech where it reads it back to me. That has been an awesome help to help me to improve my grammar, and syntax, and make my thoughts clearer without this technology, I wouldn’t be writing.
Over the years, my reading skills have improved thanks to technology. I use narration on the Kindle App for novels, text-to-speech software on the iPad for articles and other materials, and I also enjoy listening to audiobooks. Without technology, I wouldn’t be reading.
I don’t want to go back to a life without technology.
Prompt’s September 16, 2023
How often do you walk or run?
I need to make walking and other exercises a priority again and a part of my routine. That is my goal for October, and even starting this coming week.
I prefer walking, and easy low-impact exercising for my joints due to Rheumatoid Arthritis. Exercising and stretching are one of the keys to keeping my mobility longer.
How do you exercise? If you have Rheumatoid Arthritis or a chronic illness, how do you exercise? What exercises would you like for me to discuss in a future blog post?
Rheumatoid Arthritis Fatigue
I have RA (Rheumatoid Arthritis) in all my joints. The one thing that can stop me in my tracks is fatigue. It can be very difficult to manage this symptom. Click on the link to continue reading. Please Like and Share too. Thank you.
I have RA (Rheumatoid Arthritis) in all my joints. The one thing that can stop me in my tracks is fatigue. It can be very difficult to manage this symptom.
What does RA Fatigue do?
Some days, I can easily get tired quickly throughout the day. People tell me everyone gets tired, which is true. RA Fatigue is different. It is like dealing with a dying device battery after using it for a few hours it needs to be plugged in.
I wake up in the morning with a lot of energy and then by the afternoon, my energy is draining away like a dead battery. Then I’m exhausted. There are times that I pushed through the fatigue to get things done before I take a nap.
Treatment for RA Fatigue
The best way to deal with RA Fatigue is to have the RA under control by medicine. That’s what I have learned. Taking a nap, when I need it. If there are tasks that must get done I pushed through the fatigue, and then rest afterward.
Other people with Rheumatoid Arthritis have their strategies for dealing with fatigue. For me taking a nap helps.
If you are battling RA Fatigue and nothing is helping you to manage your symptom, please talk to your rheumatologist.
If you have questions, let me know in the comments
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Prompt’s August 11, 2023
I want to make a difference by taking away the stigma of accommodations for people with disabilities. Click on the link to continue reading. Like and share too!
What change, big or small, would you like your blog to make in the world?
I want to make a difference by taking away the stigma of accommodations for people with disabilities.
To bring awareness of the struggles of the disabled.
I want society to look at a disabled person to ask what accommodations that person needs to live a happy, independent, and successful life.
Prompt’s August 3, 2023
To be honest, I don’t know how to answer this question. To read click on the link.
How would you describe yourself to someone who can’t see you?
To be honest, I don’t know how to answer this question. If someone can’t see me because that person is blind, how do I describe a disability? I can’t. I have no words.
I do have deformities in my joints from battling Rheumatoid Arthritis since I was a child. If that person wanted to feel my fingers to understand my joint damage. Perfectly fine with me.
Prompt’s July 25, 2023
What would you change about modern society?
I would make accommodations available to the disabled community so that we can live an independent life.
Prompt’s July 18, 2033
Making an enormous mess, I get overwhelmed easily.
What bothers you and why?
Making an enormous mess, I get overwhelmed easily.
Today, I decided to clean behind my nightstand. It needs it. My small room becomes cluttered quickly. In the middle of making progress, I discover that my floor lamp’s base broke.
I want to cry and scream. Just walk away from my mess. There’s not enough light. I’m frustrated and dealing with my emotions.
It’s okay that I am upset and feeling overwhelmed. This is part of the process of cleaning and organizing with a ADHD mind.
I will get this done tonight because I have a plan.
Prompt’s July 7, 2023
Rheumatoid arthritis because I have it, and I know how it affects my life. To continue reading click on the link below.
On what subject(s) are you an authority?
Rheumatoid arthritis because I have it, and I know how it affects my life.
Dyslexic because I deal with dyslexia, dysgraphia, and dyscalculia.
The Bible. I am reading it, and I want to understand God better.
Writing. For years I have researched and read books on how to write a novel.
If I have questions or want to understand a subject better, I read and research things.
Learning never ends.
Alexandra Mars 