Anemia

I want to give a quick update about what’s been happening. I have been dealing with severe anemia again.

My iron is extremely low in my body, making me feel run down exhausted, be dizziness, and concentration is difficult. I am handling everything day by day.

My doctor believes somewhere internally that my body is losing a little bit of blood whether that’s in my digestive track or being caused by my menstrual cycle is yet to be determined.

I’m in the process now of getting tests done and being referred to other doctors to determine the causes of my anemia. I will be starting iron infusions in the next couple of weeks, which I’m hoping it will be next week. Until then I’m just taking it easy.

Here are the links to my podcasts:

https://anchor.fm/alexandra-mars1/episodes/Fridays-Topic-anemia-Dec-3–2021-e1b7gbc

https://anchor.fm/alexandra-mars1/episodes/Fridays-Topic-update-on-my-Anemia-Dec-10–2021-e1bht9j

Oct 13, 2021

Yesterday, I received my infusion, and the flare-up is over! I am feeling much better. Now, I need to get back into my schedule and start to exercise again. So, I will be working on that this week.

I am blessed to have found a biologic that works for me. There are others with RA that it takes trying different medications to find what works for them.

Rheumatoid Arthritis is an nasty disease and it affects everyone differently.

October Flare-up Day Two

Here’s a link if you would prefer to listen:

https://anchor.fm/alexandra-mars1/episodes/Day-4-of-the-Flare-up-of-Rheumatoid-Arthritis-e18jgt5/a-a6m6rkn

Well, it is day two of my flare-up dealing with the RA (Rheumatoid Arthritis). I am feeling a little bit better than yesterday, and I was able to get my laundry done last night; so that was a huge win in my favor. I talk to my rheumatologist’s office staff and I’m able to get my infusion next week. Hip hip hooray! Now, it’s just surviving until next week to get my meds.

So I’m glad I’m getting my infusion next week. My left ankle joint feels like it is on fire it and it is hurting all the time, and there’s nothing that doesn’t stop the pain unless I’m sleeping. Today, my hips starting are aching. I have been taking extra meds over-the-counter to help with the pain, especially at night. To be honest, this is just my life when I have a flare-up. I’m just doing the basic things to get through my day until I get my infusion.

I am focusing on what I can do instead of what I can’t. And my attitude helps a lot when dealing with a bad flare that’s trying to get worse. If I sit here and focused on what I cannot do I would be so depressed. That I would find myself in a dark place that I don’t want to be. And I find it helps me to focus on what I can do especially when I’m in a lot of pain. So what am I doing? I am working on my blog right now, I plan to read a book later today, and if I feel up to it I am planning to work on a new story outline it’s going through my head. I am focusing on tasks it does not take a lot of energy and where I can sit and do not affect my joints that much. And tonight I’ll probably watch TV again. Perhaps a movie 🎥. So basically the tasks that I’m doing are not putting a lot of stress on my joints or causing me pain.

I’m prioritizing tasks that must get done. I took out the garbage this morning. I am doing tasks that need to get done that can’t wait because I’m in survival mode.

I don’t care that the dishes are not done or my house is messy and cluttered. Or am I’m still in my pajamas. Right now, it’s about me taking care of myself independently to the best of my ability despite having pain. That means that I have to let other things go until I am feeling better.

September 18, 2021

I’m gonna keep this post short because I’m still not feeling well. I am improving, slowly. Anyway, I want to explain why what is going on.

For most of September, I have been dealing with a lot of mucus caused by my sinuses. It is also ragweed season where I live, and I was exposed to someone who was sick with something. So it is a combination of the perfect sickness storm.

I went to urgent care about a week ago, and I was tested for Covid and the flu which were both negative. After a few days after my visit, then I called and made an appointment with my primary doctor. And she decided that she wanted to test me for Covid again. I’m still waiting for the results from that test but I also believe that that test will also be negative as well.

If I would’ve treated my early symptoms of a sinus infection by having antibiotics in the beginning I would not be this bad. That’s my own fault. But the reason I was hesitant was because of all of the Covid protocols. But I have learned my lesson on that. And now it’s just gonna take some time to get the mucus out of my chest and to get back to my normal.

Update: My second Covid test was negative.

Horse Pills

Why do doctors like to prescribe horse pills that people could choke on? I’m not talking about actual horse pills for horses. My rant is about huge pills to swallow. I’ve discussed in previous posts about dealing with rheumatoid arthritis since I was seven years old. The arthritis affects my neck and jaw joint, which makes it difficult to swallow huge pills.

Every few months, I need blood work done to check different things. This past summer, my blood work showed that my potassium was low. So, I added a potassium supplement, hoping to void a potassium prescription because the pills are huge.

About a week ago, I had my blood work done; the lab order indicated that my rheumatologist and my primary doctor wanted to check my potassium levels.

That Friday, I received a call from my primary doctor’s nurse, and she informed me that my potassium was low. She asked if I was taking any potassium. I explained that I was taking a supplement and how much. She said she would tell the doctor and to see what he wanted to do next.

Well, I knew what my primary doctor would prescribe a potassium prescription that were horse pills. An hour later, the nurse called me back to say the doctor had sent a prescription to my pharmacy and wanted me to start that night.

I asked, about the dose, and soon learned that the pills were horse pills. Then I explained to the nurse, I couldn’t swallow those pills simply due to the huge size. She told me to cut them in half. I explained, that I had and still had difficulty swallowing them. What most people don’t understand a huge dose of potassium comes in a tablet form and once the pill is cut, still leaves it thick, and there’s a bitter chalky taste afterwards. Then she suggested the liquid potassium which it tastes nasty. It does! Yuck!

I explained that I took it before and I can’t handle it.

The nurse lectured me the importance about potassium and how it could damage my overall health, which is true. She acted like there were no other options available to my problem.

I was mad, my temper was about to roar. I don’t like to be treated like a child just because I’ve health issues. I had explained many times to my primary doctor I have difficulty swallowing my pills, and when the pills are huge I can’t swallow them. I wasn’t against taking potassium because I need it, but I was looking at the situation that I would probably be taking potassium for the rest of my life; I wanted a pill that I could swallow.

During the nurse’s lecture it was up to me to discover a solution. So, I ask, what about a smaller dose?

She said, that I would have to take two pills.

That was fine with me.

So, I went to pick up my prescription and learned that my doctor order capsules, when wet, these pills are slippery. As a bonus, they are extended release I can take one in the morning and evening! Yay!